{"id":6266,"date":"2024-11-25T11:20:00","date_gmt":"2024-11-25T16:20:00","guid":{"rendered":"https:\/\/copingspace.org\/afliccion-y-duelo\/cuidados-paliativos-y-terminales\/"},"modified":"2025-12-10T12:15:14","modified_gmt":"2025-12-10T17:15:14","slug":"cuidados-paliativos-y-terminales","status":"publish","type":"page","link":"https:\/\/copingspace.org\/es\/afliccion-y-duelo\/cuidados-paliativos-y-terminales\/","title":{"rendered":"CUIDADOS PALIATIVOS Y TERMINALES"},"content":{"rendered":"

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Los cuidados paliativos y terminales pedi\u00e1tricos pueden ser una parte importante del tratamiento de un ni\u00f1o, lo que mejora la calidad de vida de toda la familia. A pesar de ello, muchas personas no entienden su importancia o tienen miedo de usar estos servicios. Conocer el papel y los beneficios del apoyo paliativo y terminal puede ayudar a las familias a tomar decisiones acertadas y aprovechar el tiempo que les queda.<\/p>\n

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Los cuidados paliativos y terminales pedi\u00e1tricos pueden ser una parte importante del tratamiento de un ni\u00f1o, lo que mejora la calidad de vida de toda la familia. A pesar de ello, muchas personas no entienden su importancia o tienen miedo de usar estos servicios. Conocer el papel y los beneficios del apoyo paliativo y terminal puede ayudar a las familias a tomar decisiones acertadas y aprovechar el tiempo que les queda.<\/p>\n

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\"\"Los cuidados paliativos pedi\u00e1tricos (PPC) y los cuidados terminales son servicios de apoyo centrados en aliviar la carga de la enfermedad o herida de tu hijo en toda la familia durante el tratamiento y en la etapa final de la vida. Ambos pueden mejorar enormemente la experiencia para ti y tu hijo. Sin embargo, debido al miedo, la confusi\u00f3n o la falta de conocimiento, muchas personas dudan en aceptar el apoyo.<\/p>\n

A continuaci\u00f3n, encontrar\u00e1s una breve descripci\u00f3n de cada servicio para que puedas tomar una decisi\u00f3n informada. Para conocer las opciones disponibles y adecuadas para tu hijo, solicita una consulta con su equipo m\u00e9dico.<\/p>\n

[\/et_pb_text][et_pb_accordion open_toggle_text_color=\u00bb#19bcb9″ closed_toggle_text_color=\u00bb#f7f7f7″ closed_toggle_background_color=\u00bb#19bcb9″ icon_color=\u00bb#f7f7f7″ module_id=\u00bbinfo\u00bb module_class=\u00bbdots-list\u00bb _builder_version=\u00bb4.27.4″ toggle_font_size=\u00bb20px\u00bb custom_padding=\u00bb||30px|\u00bb custom_padding_tablet=\u00bb\u00bb custom_padding_phone=\u00bb\u00bb custom_padding_last_edited=\u00bbon|phone\u00bb hover_enabled=\u00bb0″ toggle_font_size_tablet=\u00bb\u00bb toggle_font_size_phone=\u00bb15″ toggle_font_size_last_edited=\u00bbon|desktop\u00bb z_index_tablet=\u00bb500″ custom_css_free_form=\u00bb.et_pb_pricing_heading {|| display: none;||}||.et_pb_pricing_content_top {|| padding-top: 0px;|| padding-bottom: 0px;||}||.et_pb_featured_table {|| padding-bottom: 65px;||}||li::marker {|| color: #00b1ad;||}||.entry-content li {|| padding-bottom: 1px; margin-left: 10px;||}\u00bb custom_css_toggle=\u00bbborder-radius: 10px;\u00bb toggle_text_shadow_horizontal_length_tablet=\u00bb0px\u00bb toggle_text_shadow_vertical_length_tablet=\u00bb0px\u00bb toggle_text_shadow_blur_strength_tablet=\u00bb1px\u00bb closed_toggle_text_shadow_horizontal_length_tablet=\u00bb0px\u00bb closed_toggle_text_shadow_vertical_length_tablet=\u00bb0px\u00bb closed_toggle_text_shadow_blur_strength_tablet=\u00bb1px\u00bb body_text_shadow_horizontal_length_tablet=\u00bb0px\u00bb body_text_shadow_vertical_length_tablet=\u00bb0px\u00bb body_text_shadow_blur_strength_tablet=\u00bb1px\u00bb body_link_text_shadow_horizontal_length_tablet=\u00bb0px\u00bb body_link_text_shadow_vertical_length_tablet=\u00bb0px\u00bb body_link_text_shadow_blur_strength_tablet=\u00bb1px\u00bb body_ul_text_shadow_horizontal_length_tablet=\u00bb0px\u00bb body_ul_text_shadow_vertical_length_tablet=\u00bb0px\u00bb body_ul_text_shadow_blur_strength_tablet=\u00bb1px\u00bb body_ol_text_shadow_horizontal_length_tablet=\u00bb0px\u00bb body_ol_text_shadow_vertical_length_tablet=\u00bb0px\u00bb body_ol_text_shadow_blur_strength_tablet=\u00bb1px\u00bb body_quote_text_shadow_horizontal_length_tablet=\u00bb0px\u00bb body_quote_text_shadow_vertical_length_tablet=\u00bb0px\u00bb body_quote_text_shadow_blur_strength_tablet=\u00bb1px\u00bb border_color_all=\u00bb#e8e8e8″ box_shadow_horizontal_tablet=\u00bb0px\u00bb box_shadow_vertical_tablet=\u00bb0px\u00bb box_shadow_blur_tablet=\u00bb40px\u00bb box_shadow_spread_tablet=\u00bb0px\u00bb text_shadow_horizontal_length_tablet=\u00bb0px\u00bb text_shadow_vertical_length_tablet=\u00bb0px\u00bb text_shadow_blur_strength_tablet=\u00bb1px\u00bb use_border_color=\u00bbon\u00bb border_color=\u00bb#e8e8e8″ border_style=\u00bbsolid\u00bb locked=\u00bboff\u00bb global_colors_info=\u00bb{}\u00bb sticky_enabled=\u00bb0″][et_pb_accordion_item title=\u00bbCuidados paliativos pedi\u00e1tricos\u00bb open=\u00bbon\u00bb _builder_version=\u00bb4.27.4″ custom_padding_tablet=\u00bb\u00bb custom_padding_phone=\u00bb\u00bb custom_padding_last_edited=\u00bbon|phone\u00bb hover_enabled=\u00bb0″ global_colors_info=\u00bb{}\u00bb sticky_enabled=\u00bb0″]<\/p>\n

Los cuidados paliativos pedi\u00e1tricos (PPC) comprenden atenci\u00f3n especializada que se centra en reducir la carga general de la afecci\u00f3n m\u00e9dica del ni\u00f1o para mejorar la calidad de vida de toda la familia. Estos equipos est\u00e1n formados por una amplia gama de profesionales, entre los que se incluyen m\u00e9dicos, enfermeras, trabajadores sociales, capellanes y, a veces, otros especialistas, como psic\u00f3logos, fisioterapeutas, etc. En coordinaci\u00f3n y trabajo conjunto con los otros equipos m\u00e9dicos de tu hijo, proporcionar\u00e1n una variedad de servicios centrados en reducir el sufrimiento f\u00edsico y mental de cada miembro de la familia. Los profesionales que integren el equipo de PPC de tu hijo se elegir\u00e1n en funci\u00f3n de lo que sea m\u00e1s apropiado para ustedes.<\/p>\n

Los cuidados paliativos suelen confundirse con los cuidados terminales, pero no son solo para el final de la vida. En efecto, muchas familias se benefician del apoyo de cuidados paliativos en las primeras etapas del proceso m\u00e9dico de su hijo. En muchos hospitales o cl\u00ednicas m\u00e9dicas, se pueden solicitar estos servicios en cualquier momento.<\/p>\n

En caso de ser necesario, el equipo de PPC de tu hijo organizar\u00e1 un primer encuentro contigo y tu hijo para entender sus deseos y conocer a su familia. Luego, har\u00e1n sugerencias sobre c\u00f3mo pueden proporcionar el mayor apoyo. Puede ser de ayuda para controlar los efectos secundarios de los tratamientos, o ayudarlo a hablar con el equipo m\u00e9dico y abogar por ustedes.<\/p>\n

Estos servicios no se limitan solo a los per\u00edodos de hospitalizaci\u00f3n de tu hijo. El equipo de PPC puede brindar apoyo en el hospital, en la cl\u00ednica y en casa. Har\u00e1n todo lo que est\u00e9 a su alcance para asegurarse de que cada d\u00eda sea el mejor posible para todos.<\/p>\n

A continuaci\u00f3n, encontrar\u00e1s algunas formas en que los equipos de cuidados paliativos pueden ayudar. Habla con tu proveedor m\u00e9dico para averiguar c\u00f3mo su departamento de cuidados paliativos pedi\u00e1tricos puede apoyar a tu hijo.<\/p>\n

 <\/p>\n\n\n\n\n\n\n\n
Las necesidades de tu familia<\/strong><\/span><\/td>\nC\u00f3mo pueden ayudar los cuidados paliativos<\/strong><\/span><\/td>\n<\/tr>\n
Coordinaci\u00f3n de la atenci\u00f3n y comunicaci\u00f3n<\/strong><\/span><\/td>\n\n
    \n
  1. Re\u00fane a todos los equipos m\u00e9dicos para coordinar la atenci\u00f3n y las comunicaciones entre los departamentos.<\/li>\n
  2. Ayuda a mejorar la comunicaci\u00f3n entre el equipo m\u00e9dico y la familia.<\/li>\n
  3. Se asegura de que todas las partes involucradas en el cuidado de tu hijo est\u00e9n al tanto de los objetivos por los que deben trabajar.<\/li>\n<\/ol>\n<\/td>\n<\/tr>\n
Alivio de los s\u00edntomas<\/strong><\/span><\/td>\n\n
    \n
  1. Alivia el dolor f\u00edsico y el sufrimiento.<\/li>\n
  2. Controla los s\u00edntomas graves.<\/li>\n
  3. Alivia los s\u00edntomas que interfieren en sus objetivos.<\/li>\n<\/ol>\n<\/td>\n<\/tr>\n
Conversaciones sobre objetivos de atenci\u00f3n y toma de decisiones<\/strong><\/span><\/td>\n\n
    \n
  1. Ayuda a explorar todas las opciones, beneficios y cargas.<\/li>\n
  2. Ayuda a sobrellevar las conversaciones dif\u00edciles.<\/li>\n
  3. Facilita las conversaciones sobre la planificaci\u00f3n anticipada de atenci\u00f3n y los objetivos de atenci\u00f3n.<\/li>\n<\/ol>\n<\/td>\n<\/tr>\n
Apoyo<\/strong><\/span><\/td>\n\n
    \n
  1. Los conecta con servicios y recursos complementarios para abordar dificultades relacionadas con la atenci\u00f3n m\u00e9dica.<\/li>\n
  2. Apoyo emocional para ti, tu hijo y sus hermanos.<\/li>\n
  3. Apoyo espiritual<\/li>\n<\/ol>\n<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n

    [\/et_pb_accordion_item][et_pb_accordion_item title=\u00bbServicios terminales\u00bb _builder_version=\u00bb4.27.4″ custom_padding_tablet=\u00bb\u00bb custom_padding_phone=\u00bb\u00bb custom_padding_last_edited=\u00bbon|phone\u00bb hover_enabled=\u00bb0″ global_colors_info=\u00bb{}\u00bb open=\u00bboff\u00bb sticky_enabled=\u00bb0″]<\/p>\n

    Los servicios terminales son una extensi\u00f3n de los cuidados paliativos, pero se centran m\u00e1s espec\u00edficamente en el final de la vida. Al igual que los cuidados paliativos, los cuidados terminales incluyen profesionales de distintas especialidades (y a veces voluntarios) en sus equipos. Sin embargo, estos servicios tienen un \u00e9nfasis en los tratamientos de comodidad, la compasi\u00f3n y la mejora de la calidad de vida a medida que se acerca a su fin.<\/p>\n

    Para recibir los servicios terminales, un m\u00e9dico debe presentar una solicitud y demostrar que tu hijo cumple con los requisitos de elegibilidad y que est\u00e1 cerca del final de la vida. En muchos lugares, a diferencia de lo que ocurre con los pacientes adultos, los ni\u00f1os pueden calificar para los servicios terminales mientras reciben tratamientos curativos. Esto se conoce como \u201catenci\u00f3n concurrente\u201d.<\/p>\n

    Los equipos de cuidados terminales trabajan para hacer la vida lo m\u00e1s f\u00e1cil posible para toda la familia en este momento tan dif\u00edcil. Adem\u00e1s de brindar servicios, pueden ayudar a administrar los medicamentos, coordinar al equipo m\u00e9dico y encargarse de los suministros de tu hijo. La coordinaci\u00f3n de los servicios es flexible, ya que hay varios servicios disponibles las 24\u00a0horas del d\u00eda. Adem\u00e1s del apoyo m\u00e9dico, los cuidados terminales ofrecen servicios relacionados con el bienestar mental y emocional de toda la familia, como musicoterapia o masajes, apoyo espiritual, servicios de duelo y atenci\u00f3n de otros proveedores de salud mental.<\/p>\n

    Los servicios terminales suelen prestarse en el hogar, pero tambi\u00e9n se pueden prestar en el hospital. Aunque conveniente, suele ser algo aterrador para la familia y el ni\u00f1o. Lo m\u00e1s importante que debes recordar es que el equipo de cuidados terminales quiere ayudarlos a que este momento sea lo mejor posible para todos. Nadie conoce mejor a tu hijo que t\u00fa, as\u00ed que puedes dirigir el proceso.<\/p>\n

    Es posible que los trabajadores de cuidados terminales ya est\u00e9n familiarizados con las necesidades m\u00e9dicas de tu hijo antes de venir, pero depender\u00e1n de ti para recibir instrucciones sobre las rutinas y preferencias de la familia. Como no eres solo un diagn\u00f3stico, una buena idea es preparar una breve hoja de \u201cdatos divertidos\u201d que cada uno quiera contarle al equipo de servicios terminales (nuestra plantilla \u201cTodo sobre m\u00ed\u201d<\/a><\/strong> puede ser una gran manera de empezar). Esta puede ser una buena actividad para toda la familia y los ayudar\u00e1 a conocerte a ti y a tus necesidades. Por otra parte, los servicios terminales se van adaptando a las necesidades, si no est\u00e1s conforme con un miembro del personal o con los servicios prestados, puedes solicitar un cambio cuando lo desees.<\/p>\n

    [\/et_pb_accordion_item][et_pb_accordion_item title=\u00bbCuidados terminales o cuidados paliativos\u00bb _builder_version=\u00bb4.27.4″ custom_padding_last_edited=\u00bboff|phone\u00bb hover_enabled=\u00bb0″ global_colors_info=\u00bb{}\u00bb open=\u00bboff\u00bb sticky_enabled=\u00bb0″]<\/p>\n

    Los cuidados paliativos y los cuidados terminales se confunden o se usan indistintamente. Ambos tipos de cuidados son complementarios a los tratamientos m\u00e9dicos que recibe tu hijo y est\u00e1n centrados en apoyar a toda la familia. Sin embargo, cada uno cumple un papel espec\u00edfico en momentos determinados.<\/p>\n

    A continuaci\u00f3n, encontrar\u00e1s una descripci\u00f3n general sobre las principales diferencias y semejanzas entre los cuidados paliativos y los cuidados terminales.<\/p>\n\n\n\n\n
    Cuidados paliativos<\/strong><\/span><\/td>\nCuidados terminales<\/strong><\/span><\/td>\n<\/tr>\n
    \n
      \n
    1. Finalidad<\/span>:<\/strong> mejorar la calidad de vida con o sin atenci\u00f3n curativa.<\/li>\n
    2. Criterios<\/span>:<\/strong> diagn\u00f3stico que limita la vida.<\/li>\n
    3. Objetivo<\/span>:<\/strong> aliviar el sufrimiento, capacitar al paciente, establecer objetivos de atenci\u00f3n y ofrecer apoyo f\u00edsico\/emocional\/social\/espiritual.<\/li>\n
    4. Momento<\/span>:<\/strong> cualquier etapa de la enfermedad a partir del diagn\u00f3stico.<\/li>\n
    5. Lugar<\/span>:<\/strong> normalmente, en el hospital, aunque algunos equipos ofrecen visitas ambulatorias o a domicilio.<\/li>\n
    6. Financiaci\u00f3n<\/span>:<\/strong> seguros o autofinanciaci\u00f3n.<\/li>\n<\/ol>\n<\/td>\n
    		\n
      \n
    1. Finalidad<\/span>:<\/strong> brindar atenci\u00f3n del final de la vida a los pacientes.<\/li>\n
    2. Criterios<\/span>:<\/strong> derivaci\u00f3n m\u00e9dica que indica elegibilidad, a diferencia de los adultos, los pacientes pedi\u00e1tricos pueden calificar mientras reciben tratamientos curativos (denominada \u201catenci\u00f3n concurrente\u201d).<\/li>\n
    3. Objetivo<\/span>:<\/strong> apoyo mediante la atenci\u00f3n del final de la vida con comodidad y compasi\u00f3n.<\/li>\n
    4. Momento<\/span>:<\/strong> al final de la vida.<\/li>\n
    5. Lugar<\/span>:<\/strong> normalmente, en casa con algunas opciones para pacientes hospitalizados.<\/li>\n
    6. Financiaci\u00f3n<\/span>:<\/strong> Medicare, Medicaid, seguros.<\/li>\n<\/ol>\n<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n\n\n\n\n
      Semejanzas<\/strong><\/span><\/td>\n<\/tr>\n
      \n
        \n
      1. Enfoque en la calidad de vida<\/li>\n
      2. Tratamientos de comodidad<\/li>\n
      3. Equipo integrado por profesionales de distintas \u00e1reas<\/li>\n<\/ol>\n<\/td>\n
      		\n
        \n
      1. Orientado al plan<\/li>\n
      2. Atenci\u00f3n f\u00edsica y mental<\/li>\n<\/ol>\n<\/td>\n
      		\n
        \n
      1. Servicios de duelo<\/li>\n
      2. Servicios espec\u00edficos para ni\u00f1os<\/li>\n
      3. Centrado en la familia<\/li>\n<\/ol>\n<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n

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        Los cuidados paliativos y terminales pedi\u00e1tricos pueden ser una parte importante del tratamiento de un ni\u00f1o, lo que mejora la calidad de vida de toda la familia. A pesar de ello, muchas personas no entienden su importancia o tienen miedo de usar estos servicios. Conocer el papel y los beneficios del apoyo paliativo y terminal […]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":6067,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":""},"class_list":["post-6266","page","type-page","status-publish","hentry"],"yoast_head":"\nCUIDADOS PALIATIVOS Y TERMINALES - Coping Space<\/title>\n<meta name=\"description\" content=\"Los cuidados paliativos y terminales pedi\u00e1tricos pueden ser una parte importante del tratamiento de un ni\u00f1o, lo que mejora la calidad de vida de toda la familia.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/copingspace.org\/es\/afliccion-y-duelo\/cuidados-paliativos-y-terminales\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"CUIDADOS PALIATIVOS Y TERMINALES - 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