by Katie Holcomb | Mar 19, 2022
BLOG Finding Your Voice in the Healthcare System: How to Advocate for Your Child By Charlotte Klinepeter, KIF1A Mom and KIF1A.ORG Administrative Manager Wouldn’t it be nice to call the shots as a patient in the healthcare system? As a parent of a child diagnosed with...
by Katie Holcomb | Feb 19, 2022
BLOG How to Stay Connected While Apart Thanks to a historically bad flu season, surging COVID cases and cold weather, on top of caring for a child with an illness or injury, you may be limiting social interactions more than ever. Yet it is times like these that we...
by Katie Holcomb | Jan 18, 2022
BLOG Supporting Teen Siblings After a Brother or Sister’s Cancer Diagnosis You likely know, or have experienced, how a diagnosis of pediatric cancer can turn family life upside down and create challenges for siblings. This is even more true for teen siblings who are...
by Katie Holcomb | Dec 14, 2021
BLOG Living Life in the Rare Disease Lane: How to Find a Community of Support By Charlotte Klinepeter, KIF1A Mom and KIF1A.ORG Administrative Manager We’ve all had moments, or even seasons of life, where we are “living in the fast lane.” The typical hustle and bustle....
by Katie Holcomb | Oct 26, 2021
BLOG Our Favorite Resources to Help Children Cope A child’s illness or injury can be challenging and confusing for everyone. A wide range of emotions and reactions are “normal”. Your child may regress, display heightened anxiety, or have trouble expressing how they...
