by Katie Holcomb | Dec 14, 2021
BLOG Living Life in the Rare Disease Lane: How to Find a Community of Support By Charlotte Klinepeter, KIF1A Mom and KIF1A.ORG Administrative Manager We’ve all had moments, or even seasons of life, where we are “living in the fast lane.” The typical hustle and bustle....
by Katie Holcomb | Oct 26, 2021
BLOG Our Favorite Resources to Help Children Cope A child’s illness or injury can be challenging and confusing for everyone. A wide range of emotions and reactions are “normal”. Your child may regress, display heightened anxiety, or have trouble expressing how they...
by Katie Holcomb | Sep 11, 2021
BLOG Going Back to School: Helping Your Child Return to School After a Long Absence For most kids, the first day of school is both exciting (new school supplies, new clothes, new friends!), and nerve-wracking (new teachers, new schedules, new friends!). When a child...
by Katie Holcomb | Aug 7, 2021
BLOG Teddy Bear Clinics: Helping Kids Overcome Fear of the Doctor with Play Does your child dread going to the doctor? Are they anxious every time they need another medical test or procedure? One of the hardest parts of caregiving is making your children do hard, but...
by Katie Holcomb | Jun 24, 2021
BLOG Therapy for Your Child and You By Katherine Okonak, LSW, Center for Healthcare Delivery Science, Center for Pediatric Traumatic Stress, Nemours Children’s Health System When your child and family experience a serious medical illness or injury, everything changes....
